December 10, 2008

It's official-Biopsy shows Dylan still has Hirschsprungs Disease

That dreadful anticipated day has FINALLY arrived. Ive been emailing back and forth with the nurse of Marc Levitt's office, keeping in touch every day to see if the results of the biopsy are back. Sure enough I finally received that email with the results this evening. And here they are:


The biopsy results did come back showing that some part of his bowel is aganglionic, meaning that he does still have Hirschsprung's bowel remaining. So Dr. Levitt can perform the pull through to remove that portion of bowel. The next available date is the first full week of January. Will this work for your family? If so we can go ahead and schedule the surgery and send you an itinerary.I look forward to hearing from you.

I have since emailed back with tons of questions, and asking them to call me. Im so shocked by the fact he did fairly well for 2 years and then WAM we are at the beginning all over again....same diagnosis-same surgery. It's really scare to see your child go through the same thing all over again.....we really thought we were out of the woods, and this goes to show were right back where we started. There's no one to blame, as far as Dylan's surgeon that initially did his first diagnosis and pull-thru, I sill have the most respect for him, he helped us in times that other doctors would'nt even listen to me or take me seriously. I honestly have him to thank this time around, if it wasn't for him taking me seriously this problem would have never been found, although it did take someone else to find it. No one is God, and everyone makes mistakes, thats a common fact. Dylan's first surgeon will always hold a special place in my heart just because he is generous, caring, and really takes the time to listen to the patients parents concerns. Again without him we don't know where Dylan would be at the moment, or what kind of shape he would be in.

So we are all set for surgery on January 6th. I'm doing my best to stay positive although so many things have went wrong. Dylan is now in the care of one of the only specialist that treats this rare disorder, and I have faith that he is in good hands and will be well taken care of.

Stay tuned for more updates, thanks to all that are reading!

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