March 27, 2009

♥ Happy 3rd Birthday to Dylan ♥

Today is Dylan's 3rd Birthday, of course his birthday is a day to celebrate. I can't help but to look back 3 years ago and remember my baby being born with such a rare disorder that I thought I would lose him. In his short time here on this earth he has been through more than most adults have. He had his first helicopter ride at 2 days old, his first surgery at 3 days old....and through the years several more surgeries but yet has pulled through everything because he is a fighter. I admire his strength more then anyone will know. Dylan has dealt with more bad days then good being sick or in pain or recovering from surgery, or dealing with the uncomfortableness of daily irrigations but most days still plays and smiles like hes not had a bad day in his life. Celebrating his 3rd birthday is special, just as any other birthday he will have, we will take the time to look back and see how blessed we are to have him, and what he has overcome, and thank God for all he has done for Dylan.

March 12, 2009

Children who suffer

There are so many sick kids in the world, it breaks my heart to see this. Dylan has suffered on and off since birth with numerous illnesses and aches and pains. Its hard to watch your child suffer knowing there is nothing you can do about it. Dont get me wrong I am more than thankful and blessed that Dylan is as well as he is, cause I do know there are sicker and terminally ill children out there. Our visit to Cincinnati Childrens Hospital was a real eye opener for me, I saw children in such bad shape that I would cry...absolutely heartbreaking. It makes you thankful and makes you hug your children tighter thats for sure.

Dylan has been sick twice since his surgery in January. The most recent episode is going on now, and I have felt the need to vent which is the reason for my post today. This last surgery was a procedure to fix Dylans problems but yet we are faced with the same type of symptoms and problems we had before, so of course I ask myself...WHY did I put him through the awful experience of the surgery and the pain he indured afterwards if things were gonna end up being the same. Dont get me wrong, he is doing ok, but he gets so sick with stomach bug symptoms so often and it is really hard to watch him suffer with this. Last night he just cried and cried because he was in so much pain, and then after vomitting he finally quit crying and went to sleep. His bowel movements when he is sick like this literally stinks up the whole house, which is probably the bug or virus itself causing it to stink so bad. I just wonder if theres more behind all the stomach bugs, none of the rest of us get sick when he does this either, and most stomach bugs are contageous. Dylan having problems since birth with his intestines does make him more vulnerable to stomach bugs, and he has had more than a dozen in the past year.

With the help of God, I pray things get better as he gets older. All I can do is hope for the best and pray as much as I can.....There is a reason for everything but I will never understand why we have to see children suffer.....

March 11, 2009

Hanging in there...waiting for some type of change

So we are aproaching Dylans 3rd birthday, it has been a long journey with Hirschsprungs that Im sure is not even close to coming to an end anytime soon. Dylan has been doing well, having bowel movements, eating like hes supose too, and mantaining his weight. Ive kept quite about the after math of the surgery and hospital stay but now Im beginning to get baffled. Dylan spent 2 weeks in the hospital, and ever since then my child is just not the same child. Anyone that knows us, knows that Dylan has always been well-behaved, very sweet and loving. Its turned into the complete opposite since this last surgery, its like he has just snapped and turned into a different child. From day 1 back at home it has been exhausting, dealing with tantrums and screaming all the time. The first week home from the hospital was very upsetting, instead of enjoying being home, relaxing, and resting, I spent most of my time trying to control Dylans tantrums and fits. He did finally calm down some, but still almost 3 months later he still doesnt seem to be himself. I have no idea if its the irrigations, or if theres something bothering him, if he keeps an upset stomach, or has pains, he doesnt tell me anything, but all I know for sure is he is very determined to throw fits, almost like going through the terrible twos at age 3. Im hoping things will get better, maybe once he establishes a poo pattern and his bowel movements get more normal he will come out of some of this odd behavior, but until then all I can do is hope and pray things get back to normal.....this surgery was suppose to help him not change him. Its just been really odd.....