January 25, 2010
Popcorn is officially a "No, No" in our house
So recently Dylan has gained some weight, looking healthy, and I actually thought that just maybe his Hirschsprungs Journey was getting a bit easier, or "outgrowing" the major issues, as some HD kids do. Little did I know that most likely instead of healthy weight gain, we were looking at a bloated belly due to slower motility, meaning his bowel movements were slowing down. Dylan has always been a picky eater, does not try too many new foods, and sticks to stuff that he knows he likes. Hes never been a "healthy" eater, and I've never forced him to any one certain type of diet. There are some foods that affect him different ways, some give him diarreaha, for example if he has too much sugar in his diet. BUT, on the other hand, we are now realizing there are certain foods that he cannot have. The one thing Dylan use to absolutely love was popcorn. Believe it or not popcorn is officially a "No, No" in our house now because it causes Dyaln to completely block up. I had once suspected this a while back, but was told by a doctor that popcorn is good for kids, and a great source of fiber, and fiber is suppose to help "bulk" the stool. However, this is not the case for Dylan. He had popcorn Friday evening, starting Saturday his motility started to change, barely having a bowel movement, feeling like he needed to go but couldn't. If he did go, there wasnt much. So by Sunday, he was blocked up quite a bit, didnt eat much for breakfast (and thats some of his favorite types of foods) so I knew it was possible he wasnt feeling well. Him and I went to the store, he loves to shop, but he was very quiet on the trip there and back, when we got home he went to the couch and begin to lay around which was when I knew what was coming next. He slept a few hours, and he usually rarely naps...Sure enough his temperature went up a bit and I debated on whether to start rectal irrigations in hopes of getting ahead of the problem before it started or got worse. The irrigation wasnt an absolute success but it did help a little. Dylan did start feeling better and wanted to get up and try to play, but as soon as he did he vomitted a few times, and then was back on the couch for the rest of the evening. He did wake up fine though, and seems to be doing well, is eating again, and is having some bowel movements. So looks as things are "moving along" now and hopefully returning to normal. This goes to show that these kids are more than likely going to have issues for the rest of their lives. Probably not serious issues, and things will most likely get better as they get older, but as every other HD mother has said..."its all trial and error"...When you find foods that affect their motility in a negative way, then you make a "NO, NO" list and know they cant have it...And for Dylan this list now includes popcorn, which was always one of this favorite snacks. But another important note is to know the signs and symptoms of knowing when a blockage or obstruction is forming and get a step ahead of the problem before it gets too bad. This time I knew to react quickly and it only lasted a day, the last time he did this it lasted a week and he ended up in the hospital. Thankfully this was a short episode, which can be prevented from now on from just avoiding popcorn. So my lesson this week is, Short colon + slower motility + popcorn = a "No, No". This may not be the case for all HD kids, I have had some HD moms tell me that popcorn has no affect on their kids, but other foods do, so it is different with each child, and of course each childs HD case is never the same, noones colon is exactly the same, things affect people in different ways. The moral to the story is monitor foods and their affect on motility. I know I have learned some valuable lessons from doing so lately.